Click to subscribe to vanessas-cfsgroup There are plenty of discussion groups for CFS/fibromyalgia on the Internet. This is a good one. Some of the other groups are depressing. To learn more about the vanessas-cfsgroup group, please visit http://groups.yahoo.com/group/vanessas-cfsgroup
http://www.cfidsreport.com The CFS Report: News and Commentary on Chronic Fatigue Syndrome - [I like this site - bfg]
American Family Physician - Therefore, treatment of CFS may be variable and should be tailored to each patient. Therapy should include exercise, diet, good sleep hygiene, antidepressants, and other medications, depending on the patient's presentation.
"Ask Dr. Mom - links to products for Multiple Chemical Sensitivity - I like her site!
BottomLine Secrets - has a searchable database for articles. Very good!
Centers for Disease Control and Prevention - This web site offers information about chronic fatigue syndrome (CFS) and its diagnosis and treatment. - [Standard stay-sick treatment - bfg]
CFIDS/Fibromyalgia Self-Help - "We are a non-profit organization that offers low-cost self-help courses over the Internet and other resources for people with CFIDS, fibromyalgia and related illnesses. We focus on empowering patients through teaching scientifically-proven coping strategies in a structured, positive, supportive setting."
CFS - Information International -On this site you'll find more than 5000 files on ME/CFS and FM, organized in 90 main sections each with a basic review. All files have been professionally selected for bringing serious news, information and research on the syndromes." - I admit to a definite anti-drug bias. You will find a pro-drug bias on this site.
Chronic Fatigue Syndrome/ Myalgic encephalomyelitis. - Excellent links to international sites.
CFS Recovery Stories - Recovering from Chronic Fatigue Syndrome - These stories let you know that recovery IS possible and there are different methods of recovering. The most important thing is to believe that you will be well then try different therapies until you find one that works for you.
Chronic Fatigue Unmasked -Web Page of Dr. Gerald E. Poesnecker, a physician who has, over the last forty-five years, successfully treated more Chronic Fatigue Syndrome sufferers than any other living person. Part of his book is on-line.
Co-Cure: Chronic Fatigue Syndrome and Fibromyalgia Information Exchange Forum - The name "Co-Cure" stands for "Cooperate and Communicate for a Cure." - The mailing list has been established with the goal of furthering co-operative efforts towards finding the cure for the illness(es) commonly referred to as Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM). The website has articles and links - excellent website
This website is a "must-read"!!!!! - BFG
"Finally, I have now published my 40-plus page paper entitled THE ANSWER- to "Why is the Plane of Our Nation's Health in a Death Spiral??" to this site. It is a work in progress, but is in a stage of completeness worthy of being on the site. It is the culmination of nearly two years of research on the subject of food-related disorders and contains an amazing amount of facts that have been hidden from public view concerning this subject. How certain foods came into being and common usage and how they directly relate to such conditions as chronic fatigue, irritable bowel syndrome, insomnia, ADHD, depression, allergies, and sever immune-mediated diseases like diabetes, lupus, and rheumatoid arthritis are covered. It is getting to be quite long, but there is truly now way to shorten this vital information. Like I tell my clients, "There is no law that you have to read it all in one sitting. Think of it as a free, short BOOK rather than a long research paper. It's all how you look at it, right?" .....please begin using http://dogtorj.tripod.com for the same information in a more user-friendly format.
Duncan Crow's body electric columns - good articles on parasites, etc.
Environmental Illness Society of Canada - is helping find ways for people to cope. "Environmental Illness includes Multiple Chemical Sensitivity (MCS), Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), Gulf War Syndrome (GWS). Some say that current Environmental Illness sufferers are the canaries of our society, in that what is now happening to them, is in reality happening to all of us."
Germ Warfare Against America - treatment of Gulf War Syndrome. Very good site.
Knowledge is the Cure - This site is about a man's recovery from AIDS. I think what he says applies to CFIDS. He gives the remedies he used to improve his health. Highly recommended!
"They neglected to tell me that these chemicals they were using to try to repair my damaged immune system were in themselves immune suppressing substances. I didn’t realize at the time, but later discovered that many people were dying simply because AZT had damaged their immune systems beyond repair. The next time I got a fresh bottle of AZT, I kept and read the medical insert that accompanied it. I did the same with my other medications. I came to discover words like neurotoxicity. When I looked into it, I found that neurotoxicity means "this will be toxic to your nervous system and/or your brain". I also discovered that I would experience possible kidney damage, liver damage, and numerous other side effects that I wasn't told about beforehand. I was upset and angry that these people who were supposed to be taking care of me were giving me these poisons. They had no good explanation as to why they neglected to tell me these things. My faith in the medical community began to fade."
"Well, I didn’t need a medical license to see which group of people were living healthy and which group were slowly and painfully dying. I talked to people and read a couple of books on some basic but effective alternative therapies. These people were determined to live. They told me that if I wanted to live a long healthy life, it was going to be totally up to me, and they were right."
"My doctor advised against it and suggested that I stay with the "more proven" methods of treatment. I knew that the "more proven" methods my doctor referred to were not truly proven to do anything! I didn’t see anyone living more than a couple of years beyond their initial diagnosis, if that long. Those who did live longer were emaciated and constantly sick and on numerous medications. That’s not the quality of life I wanted to have. The medicines that they could offer me were, in my eyes, only experimental. If I was going to be a living experiment in the treatment of this disease, I was going to be the one to take responsibility for my life."
"Even though the treatments that I use have been here on earth for millennia, I would not have found them if I had not asked God to show me the way. All I had to do was ask."
"The following are methods of alternative therapies that have helped me to stay healthy. As with conventional medicine, not all methods work for all people. Unfortunately some people are beyond the help of alternative therapies due to the extensive damage already done by conventional, immune suppressing drugs. If you are currently on medication, take the time to study what you are putting in your body, and ask your doctor if your prescription is an immune boosting or an immune suppressing chemical. All of my chosen methods of treatment are immune boosting substances and practices. Every immune suppressing substance that you put in your body is a step backward in your fight toward recovery. If your health care professional does not agree with this last statement, you need to ask yourself why!"
Medical View - This is very well written and pretty much explains why most doctors are zero help
Ozone - the Incredible Story of Medical Ozone - If it helps AIDS as well as this site says, perhaps it is the cure for CFS....
Post-Polio Syndrome Related Links - the symptoms of post-polio syndrome and CFS are similar. Some medical practitioners think they are the same disease
Remedy Find - Unfortunately, since the potential triggers of CFS are so broad and undefined, CFS treatments usually need to be customized to each individual patient. Removal of the initial stressors, detoxification, and treatment to balance the immune and neuroendocrine dysfunctions are usually the first step. Simultaneously, treatments aimed at relieving specific symptoms like insomnia, depression and digestive problems are typically advised.
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Worms & parasites - This site is probably one of the best on the web on this subject.
Complete Recoveries!!!! - Look here. People had CFS, were treated for chronic yeast infection, and they are completely cured of CFS!!!!
Joyful Recovery From Chronic Fatigue Syndrome/ME (Hardcover) by Sasha Allenby (Author) Most of us have been led to believe that CFS/ME is untreatable, and that those with the condition have to struggle on with no real hope of a full recovery. But you can return to health from CFS/ME, even if you don't currently believe it is possible. Drawing on cutting-edge science, this empowering book will teach you: ? solution-focused approaches to overcoming your condition based on the world-renowned Emotional Freedom Techniques; ? how to identify and overcome your personal blocks to health; ? techniques that you can use to resolve your physical and emotional symptoms.
Fibromyalgia & Fatigue Centers, Inc. locations and contact information are listed below for your convenience. To schedule an appointment or obtain additional information, call toll-free 1-866-443-4276. A bit too far for you to travel? How about trying our Out of Town Treatment Package? Amarillo, TX • Atlanta, GA • Boston, MA • Cleveland, OH • Dallas, TX • Denver, CO • Detroit, MI • Fort Worth, TX • Las Vegas, NV • Norwalk, CT • Philadelphia, PA • Pittsburgh, PA • Salt Lake City, UT • Seattle, WA
New Jersey Chronic Fatigue Syndrome Fibromyalgia Center - [This one doesn't appeal to me - BFG]
Your Medical Detective - South Carolina, Greenville -Dr. Ronald J. Grisanti, In the year 2000, I decided to pursue certification in the field of Functional Diagnostic and Environmental Medicine. The study of this unique type of medicine has opened the door to a new and rewarding career. Unlike the field of chiropractic medicine which focuses on the diagnosis and treatment of common joint and muscle problems, physicians specializing in the field Functional and Environmental Medicine are trained to utilize and most importantly interpret the most advanced medical technological testing procedures. Instead of the "cookbook" approach to disease.. that is "name that disease and give a drug", a growing number of discerning physicians are realizing the tremendous limitation to that approach.